Patient Resources
Federal Epilepsy Programs
CDC Epilepsy Program The CDC Epilepsy Program provides a wealth of information about epilepsy, facts and statistics about epilepsy, first aid for seizures, and health and safety concerns for people living with epilepsy or seizures. The CDC also leads the Managing Epilepsy Well (MEW) network, which is [...]
VA Epilepsy Centers
VA Epilepsy Centers of Excellence The VA Epilepsy Centers of Excellence (ECoE) are a network of 16 sites that provide comprehensive epilepsy evaluation and care for Veterans with seizure disorders. To improve the care of Veterans nationwide, ECoE partner with a consortium of VA physicians, nurses, therapists, pharmacists [...]
Epilepsy Organizations
Epilepsy Alliance America is a national organization, launched in 2018, dedicated to providing support, care, and service to those with epilepsy. For more than 50 years, the Epilepsy Foundation has shone a light on epilepsy by promoting awareness and understanding, advocating for laws that matter to people with [...]
National Institutes of Health
National Institutes of Health Epilepsy Program The National Institutes of Health (NIH) Epilepsy Program at the NIH Clinical Center works with patients who have seizures or suspected seizures. Program research protocols include clinical evaluation, experimental drug studies, neuroimaging, magnetoencephalography, and surgical evaluation. Patients interested in participating should contact [...]
NAEC Releases Video to Promote Accredited Epilepsy Centers
NAEC developed a video to promote accredited epilepsy centers as providers of expert care for people with epilepsy and seizures. The 30-second video is appearing on TVs in 65 airports across the United States and Canada from November 20, 2017 – December 31, 2017, and is estimated to be [...]
SUDEP Resources for Patients and Their Families
As a part of National Epilepsy Awareness Month, the Epilepsy Foundation (EF) launched the #AimForZero seizures campaign. A goal of this campaign is to reduce the risk of sudden unexpected death in epilepsy (SUDEP) through patient education. Talking about early death in epilepsy, particularly SUDEP, is hard, but it [...]
Veterans and Epilepsy: Basic Training PNES Video
The VA Epilepsy Centers of Excellence (ECoE) video series “Veterans and Epilepsy: Basic Training” addresses the stigma of epilepsy and educates Veterans, their caregivers, and the general public about living with epilepsy. Each video in the series features a Veteran sharing his or her personal experiences and unique challenges [...]
CDC Self-Management Education Resource for Managing Epilepsy
The Centers for Disease Control (CDC) offers a free program designed to help people with epilepsy reduce symptoms and improve their quality of life. Patients will gain access to information on how to track their seizures, stress levels, sleep quality, and medication schedule. For more information on CDC’s free online [...]
Veterans and Epilepsy: Basic Training Videos
The VA Epilepsy Centers of Excellence (ECOE), in partnership with the VHA Employee Education System, developed a video series titled Veterans and Epilepsy: Basic Training. This series is currently comprised of five videos. Each video in the series features a veteran sharing his or her personal experiences and unique [...]
