SUDEP Resources for Patients and Their Families

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As a part of National Epilepsy Awareness Month, the Epilepsy Foundation (EF) launched the #AimForZero seizures campaign.  A goal of this campaign is to reduce the risk of sudden unexpected death in epilepsy (SUDEP) through patient education.  Talking about early death in epilepsy, particularly SUDEP, is hard, but it is important to let people know their risks.

Talking about SUDEP is a critical part of epilepsy care. Everyone should know what it is, and what it is now. Only by talking about it can people learn their risks and take action to improve seizure control, and ideally lessen their risks of SUDEP.

The Epilepsy Foundation hosted a webinar on Tuesday, November 14, 2017 “Talking About SUDEP.”  Dr. Daniel Friedman, epilepsy.com’s SUDEP Editor, and Wendy Miller PhD, RN, CCRN of Indiana University, discussed the latest thinking on SUDEP and the importance of talking about it and knowing your risks.